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THE PHOENIX SAN ANTONIO POLIO SURVIVORS ASSOCIATION NEWSLETTERS

Authored by BlueAngel on
Sunday, October 23, 2005

This is a copy of our latest newsletter of our San Antonio Polio Survivors' Association Newsletter The Phoenix. The newsletter is intended to have some information and humor.

Hope you enjoy reading them.

RSVP: Christmas Party December 13, 2005 @ Warm Springs Resource Center
1230 PM -- 3:00PM $2.00/plate brisket , pinto beans & potato salad. Contact 595-9200 by November 15, 2005

BlueAngel aka Ethel Taylor,
Editor

The Phoenix

The San Antonio Polio Survivors’ Association Newsletter

“Education, Fellowship, Resources & Support"

Volume 5 Issue 2 October 2005 -- November 2005

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Disclaimer

The San Antonio Polio Survivors’ Association Newsletter, THE PHOENIX, is intended to share, with our readers, information of interest to them, including medical opinion of others. It is not intended to offer specific advice or as a substitute for professional health care. Opinions, products, or services mentioned, herein, are not necessarily endorsed by the San Antonio Polio Survivors’ Association or the Warm Springs Resourcenter for People with Disabilities or Warm Springs Rehabilitation Foundation, Inc.; 5101 Medical Drive; San Antonio, Texas 78229-4801
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The next two articles are of interest to most of us due to our PPS and our own rush with destiny of becoming a part of the so-called “Golden Years”. Hope you find the articles as informative as I did. They are from the Arizona Daily Star’s Health section’s web site. The third article is from the National Institutes of Health and is as interesting as the Arizona Daily Star’s two articles.
The Arizona Daily Star's Web site is

www.azstarnet.com produced by Healthology

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Distinguishing a Severe Headache from the Warning Signs of Stroke

Written by:

Eric Sabo -

Published on: June 2, 2005

A rapid, severe headache has long been considered an early warning sign of stroke. Along with other clues, such as a sudden numbness on one side of your face or body, an extremely painful headache that seems to come out of nowhere may require an immediate trip to the emergency room. Strokes are more common as you get older, but these so-called "brain attacks" can strike at any age. The faster you get to the hospital, the better your chances of preventing serious damage to the brain.

But new research suggests that migraines and other headaches are not just an early sign of stroke, they may even put you at risk for one. Looking at some 12,700 men and women who were involved in the Atherosclerosis Risk in Communities Study, published in May in Neurology, investigators found that people who have a history of severe migraines were more likely to suffer an ischemic attack, the type of stroke that is caused by blocked blood vessels. Compared to those who reported few serious headaches over their lifetime, migraine sufferers also showed greater symptoms of having a stroke or mini-stroke, known as a transient ischemic attack.

This connection appeared strongest in men and women who suffer from aural migraines, which are associated with blurry vision and strange smells, in addition to pain. Intuitively, a link between migraines and stroke would seem to make sense. Severe headaches are believed to cause a disturbance in blood vessels, and there is an unusually high prevalence of strokes in younger migraine sufferers.

How to Tell the Difference

But these recent findings also cause some confusion. For those who frequently get serious headaches, how can one tell regular pain from a possible stroke?
"There is a great overlap in symptoms between migraine and stroke," says Philip Stang, MD, lead author of the study and an associate of the department of epidemiology at the University of North Carolina. "And there are types of migraine that include stroke features and vice-versa."

Keeping that in mind, experts say there are some potential differences as well. For one, most migraines will clear up relatively quickly, whereas stroke symptoms are constant.

The presence of certain risk factors may also make one more suspicious that a headache could be a sign of stroke. For example, younger women with migraines, especially if they smoke or take oral contraceptives, are more likely to suffer a stroke than others, says Stang. In older patients, hypertension is a more serious risk factor for stroke than severe headaches.

It may turn out that the link between migraines and stroke risk is not a serious concern. In an editorial that accompanied the study, the authors argue that there are more questions than answers at this point. Stang is cautious as well. "Since there is no laboratory test to confirm migraine, it is difficult to be so precise and assured," he says.

Still, there is little question about the importance of seeking medical help at the first signs of a stroke, including severe headaches. Specially trained hospital staff can determine if you are having a stroke and initiate treatment, which can prevent significant harm if started early. Experts recommend that you seek help immediately if you experience the following, sudden symptoms:

• Numbness or weakness of the face, arm or leg, on one side of the body
• Confusion, trouble speaking or understanding
• Trouble seeing in one or both eyes
• Problems walking, dizziness, loss of balance or coordination
• Severe headache with no known cause

Here’s the 2nd article: It is very interesting and one most of us, including the medical profession including nurses, don’t realize the dangers to the patient and family are concerned.


Right-Sided Stroke Harder To Detect

Written by:

Karen Barrow –

Published: August 25, 2005

Strokes that occur on the right side of the brain go undiagnosed more often than left brain strokes, said a new study.

Since the left side of the brain controls coordination and language, left-brain strokes usually cause clear symptoms, like slurred speech or weakness in the right hand. However, since the right side of the brain controls judgment, symptoms are more subtle.

"It is intuitive that patients, their families and their physicians might be more likely to recognize a disturbance of speech or language than a cognitive deficit," said Dr. John N. Fink of the Christchurch School of Medicine and Health Science in an editorial accompanying the study, which was published on July 30 in The Lancet.

With more right-side strokes going undetected, however, the speed and quality of care may suffer during the early stages of attack, the most critical time in preventing permanent damage. Fink points out that strokes on the right side of the brain may influence relationships, one's abilities at work and the ability to safely drive.

The study is based on data from 11,328 stroke patients in Germany. Of these, 56 percent were found to have had a stroke on the left side of their brain, while 44 percent had one on the opposite side. About 15 percent more patients with left-sided strokes were treated or admitted to the hospital within 3 hours than those with right-side strokes.

A stroke occurs when a blood vessel in the brain becomes blocked or ruptured, resulting in a lack of blood supply to a particular region of the brain. The longer this region goes without blood, the more damage that occurs. Treatments are available to stop the progression of the stroke and to prevent further brain damage.

Diagnosing a right-sided stroke is complicated for two main reasons, the researchers state. First, current stroke-diagnosing methods are designed to look for the symptoms of a left-sided stroke, making a right-sided stroke much harder to diagnose. Secondly, since a right-sided stroke affects awareness and reasoning, a patient is less able to realize that they are acting unusually and seek help in the first place.

"Right sided events are probably perceived by patient or doctor as being less severe or are not identified as a stroke at all," said study author Dr. Christian Foerch, from the Johann Wolfgang Goethe University in Frankfurt, Germany.
The study authors call for an increased awareness of right-sided strokes. But since the symptoms are so unclear, the responsibility resides mostly in the ability of doctors to be better able to identify these strokes and begin treatment quickly.

"It is up to physicians who assess patients with stroke to train other physicians and organize stroke services to improve our standard of performance," said Fink.
© 2005 Healthology, Inc.

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Stroke Information for Seniors Added to the NIHSeniorHealth Web
Site:
National Institute of Neurological Disorders and Stroke (NINDS)

Stroke Information for Seniors Added to the NIHSeniorHealth Web Site

For release: Tuesday, August 23, 2005

Each year in the United States, there are more than 700,000 strokes. Nearly three-quarters of all strokes occur in people over the age of 65 and the risk of having a stroke more than doubles each decade after the age of 55. To help older adults learn more about the signs and symptoms of stroke and the need to act quickly, the National Institutes of Health is adding four new topics on stroke to its NIHSeniorHealth web site: Act Quickly, Warnings Signs and Risk Factors, What Happens during a Stroke, and Treatments and Research. The site features easy-to-read stroke information, developed by the National Institute of Neurological Disorders and Stroke (NINDS), and may be found at www.nihseniorhealth.gov.

“Stroke is an unmistakable event. Few other medical conditions come on so suddenly or are so noticeable to a bystander,” said John R. Marler, M.D., associate director for clinical trials at the NINDS.

A stroke occurs when normal blood flow to the brain is disrupted. Brain cells die when deprived of oxygen and nutrients provided by blood. Because stroke injures the brain, the person having a stroke may not realize what is happening. But to a bystander the signs of a stroke are distinct:

• Sudden numbness or weakness of the face, arm or leg (especially on one side of the body)
• Sudden confusion, trouble speaking or understanding speech
• Sudden trouble seeing in one or both eyes
• Sudden trouble walking, dizziness or loss of balance or coordination
• Sudden severe headache with no known cause

In treating a stroke, every minute counts. New treatments are available that greatly reduce the damage caused by a stroke, but must be delivered quickly after symptoms begin. Knowing the stroke symptoms, calling 911 immediately, and getting to a hospital are critical to preventing long-term disability.

Risk factors for stroke include family history, high blood pressure, smoking, diabetes, physical inactivity, advancing age, and being overweight.
Older Americans are one of the fastest growing age groups using the Internet, especially when searching for health information. In fact, 66 percent of “wired” seniors search for health and medical information when they go online. NIHSeniorHealth, a joint effort of the National Institute on Aging (NIA) and the National Library of Medicine (NLM), was designed especially with seniors in mind. The site, which is based on the latest research on cognition and aging, features short, easy-to-read segments of information. The new section links to other information on stroke on the NINDS website at www.ninds.nih.gov. The site also links to MedlinePlus, NLM’s premier site for news on diseases and wellness, drug information, clinical trials, and other consumer health resources.

The NINDS is the nation's primary supporter of biomedical research on the brain and nervous system. It is dedicated to research and education on the causes, treatment, and prevention of stroke. The NIA leads the federal effort supporting and conducting research on aging and the health and well-being of older people. The NLM, the world's largest library of the health sciences, creates and sponsors web-based health information resources for the public and professionals. All three are components of the National Institutes of Health in Bethesda, Maryland, part of the U.S. Department of Health and Human Services.

The National Institutes of Health (NIH)—The Nation's Medical Research Agency—is the primary Federal agency for conducting and supporting basic, clinical, and translational medical research, and investigates the causes, treatments, and cures for both common and rare diseases. For more information about NIH and its programs, visit www.nih.gov.
Date Last Modified: Tuesday, August 23, 2005

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Ms Hartman is a nutritionist who contributes quite a few articles with an approach which anyone can understand. This article is about the nutritional value of Flax seed and how it can substitute for other foods in our daily diet.

What about Flaxseed?


Jann Hartman,
Baltimore, Maryland

Fish such as mackerel, lake trout, herring, sardines, albacore tuna and salmon contain two omega-3 fatty acids – eicosapentaenoic and docosahexaenoic acids (EPA and DHA). A third kind, alpha-linolenic acid, is less potent. It comes from soybeans, canola, walnut and flaxseed, and oils made from those beans, nuts and seeds.

Flaxseed oil and flaxseeds (which need to be ground into flaxseed meal to be properly utilized by your body) each provide omega-3 fatty acids. Research shows that the omega-3 fatty acids, especially those in fish, have cardioprotective benefits, but that all omega-3 fatty acids, including alpha-linolenic acid, the one in flaxseed, are needed for good health Flaxseeds are also a great source of soluble fiber as well as providing thia-min, riboflavin, niacin, trace minerals and even some high quality protein. You must consume them because your body cannot manufacture them.

To add this supplement to your diet, you can either use the flaxseeds whole or use the flaxseed oil. Practically, it is easier to use the oil and not have to bother with grinding the seeds. Remember, the oil must be refrigerated so that it does not turn rancid.

Nutritionally, flaxseeds will give you more bang for the buck. They have a pleasant, nut-like flavor and taste good sprinkled on a variety of foods. You must either chew the seeds very well or grind them, because whole seeds pass through the body without their essential nutrients being absorbed. You can purchase ground seeds, but they are much more perishable than the whole seeds. Either way, they need to be kept in the refrigerator, too. The seeds can also be bought in bulk and kept in the freezer for even longer storage.

The recommendation for adults is to use one or two tablespoons of flaxseed meal or oil daily. You can stir it into hot cereal or into your juice. It can also be used as a replacement for an egg in some recipes such as muffins or pancakes. To replace one egg, use one tablespoon flaxseed meal plus three tablespoons water (or other liquid). You can also mix one to three teaspoons of flaxseed oil with a little ketchup as a condiment. Be careful not to exceed recommended amounts as flax can have a laxative effect.
The US Department of Agriculture recently released MyPyramid, an updated guide to healthful eating and active lifestyles. You can find it online at www.mypyramid.gov.
Enter information about yourself into “My Pyramid Plan” and get a customized food guide that tells how much from each food group you need every day.

Jann Hartman, a polio survivor, has a degree in Home Economics and Nutrition and has written and lectured on nutrition for the past 20 years.

A consumer brochure, “Finding Your Way to a Healthier You: Based on the Dietary Guidelines for Americans,” can be downloaded from www.health.gov/dietaryguidelines/dga2005/document/html/brochure.htm.

Post-Polio Health (formerly called Polio Network News)
Issue: 21.2
Article title: What About Flaxseed
Author: Jann Hartman, Baltimore, MD
Page (s)/column location: Page 8
Reprinted from Post-Polio Health (formerly called Polio Network News) with permission of Post-Polio Health International (www.post-polio.org). Any further reproduction must have permission from copyright holder.

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A TEXAS BLESSING
Note: If you are not a resident of TEXAS or never have lived in the humid Southwest, you may not understand the weight of this blessing!

Bless this house, oh Lord, we cry.
Please keep it cool in mid-July.
Bless the walls where termites dine, while ants and roaches march in time. Bless our yard where spiders pass fire ant castles in the grass.
Bless the garage, a home to please carpenter beetles, ticks and fleas.
Bless the love bugs, two by two, the gnats and mosquitoes that feed on you. Millions of creatures that fly or crawl, in TEXAS , Lord, you've put them all!!
But this is home, and here we'll stay, So thank you Lord, for insect spray.

HOLD IT.............there's more....................

YOU KNOW YOU ARE IN TEXAS IN JULY WHEN. . . .
The birds have to use potholders to pull worms out of the ground.
The trees are whistling for the dogs.
The best parking place is determined by shade instead of distance.
Hot water now comes out of both taps.
You can make sun tea instantly.
You learn that a seat belt buckle makes a pretty good branding iron.
The temperature drops below 95 and you feel a little chilly.
You discover that in July it only takes 2 fingers to steer your car.
You discover that you can get sunburned through your car window.
You actually burn your hand opening the car door.
You break into a sweat the instant you step outside at 7:30 a.m.
Your biggest bicycle wreck fear is, "What if I get knocked out and end up lying on the pavement and cook to death?"
You realize that asphalt has a liquid state.
The potatoes cook underground, so all you have to do is pull one out and add butter, salt and pepper.
Farmers are feeding their chickens crushed ice to keep them from laying boiled eggs.
The cows are giving evaporated milk. Ah, what a place to call home.
God Bless Our State of TEXAS !!

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POLIO POST NEWS North Central Florida Post-Polio Support Group


Polio Survivors are Long-Time Pioneers

By Joan Swain

“Polio Pioneers” was the name given by the March of Dimes to the 1,829,916 children in grader 1-3 who participated in the 1954 field trial of the Salk poliomyelitis vaccine that was joyfully proclaimed “safe and effective” in April 1955. In her talk at the 14th Annual Conference on Post-Polio Syndrome
last April, Joan Headley, Executive Director of Post-Polio Health International, asked, “Is Our Work Finished?”

Probably not, was her answer. To help us reach that conclusion, Ms. Headley outlined the many ways in which polio survivors have served as pioneers throughout their lives. She describer “pioneer” as one who goes into previously uncharted or unclaimed territory with the purpose of exploring and possibly
colonizing it. Pioneers suffer hardships but they often form societal structure for those who follow.

Polio survivors were pioneers when they went back to their neighborhood schools with crutches, wheelchairs, and braces. They went through high school, and when it came time for collect, they were frequently financed by vocational rehabilitation scholarships. They were frequently the first in their
occupation, their work or their school.

Pioneered independent living movement

They were pioneers as educated jobseekers who sometimes were denied positions because of their disability. Surprised and indignant, a core of these polio survivors were pioneers in the independent living movement. Their demand for societal change coincided with other movements of the 60s.

Doctors learned about the musculo-skeletal system, muscle testing, reeducation of muscles, physical and
occupational therapy, brace making, and other improvements from polio pioneers. They then applied this information to other disabilities. Survivors who originally needed the help of an iron lung wanted lighter weight ventilators so that they could be more mobile, and thus more independent.

In the late 70s and early 80s, polio pioneers were important in bringing their problems with increasing weakness to the medical community. And in 1981, the first conference on the topic was held. Over the next 10 years, support groups sprang up all over the world.

Successful self-help implementers

Polio survivors have been the most successful in implementing the philosophy of self help, according to Ms. Headley, who described self help as assuming the responsibility for your own care and helping each other get the skills to be able to do that. This is basically what is now known as chronic disease self-management, and important part of the control of diabetes and other chronic conditions.

Being on the leading edge of people with disabilities, along with World War II veterans, polio survivors have the opportunity to be examples to people—we’re aging with disabilities. Issues such as Where are we going to live? Become problematic when some assisted living centers don’t want wheelchairs in the dining room. “There’s a perception of wheelchairs out there that it’s up to us to challenge and to change,” Mr. Headley said.

This article is intended for personal use only. It may not be reproduced without express written permission of the author, the North Central Florida Post-Polio Support Group, or of the publication listed in its credits.

0297 - Polio Survivors are Long-Time Survivors.doc
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These last two or three items are meant to leave a smile on your faces. You never know if they will be appreciated or if they will offend someone . They are meant to be light and to be not of the thought provoking kind of thing!

Your Age By Chocolate & Diet Stuff

YOUR AGE BY CHOCOLATE MATH

DON'T CHEAT BY SCROLLING DOWN FIRST!

It takes less than a minute... Do the math as you read.
Be sure you don't read the bottom until you've worked it out!
This is one of those waste-of-time things, but it's pretty fun.

1. First, pick the number of times a week that you would like to have chocolate. (more than one time, but less than 10)

2. Multiply this number by 2 (Just to be bold).

3. Add 5. (for overindulging on Sunday or whatever day).

4. Multiply that number by 50 (we'll wait while you get the calculator...)

5. If you have already had your birthday this year add 1755. If you haven't, add 1754.

6. Now subtract the four digit year that you were born.

You should have a three digit number...

The first digit was your original number (i.e., how many times you want to have chocolate each week).

The next two numbers are...YOUR AGE! (Oh YES, it is!!!!!)

Supposedly, THIS IS THE ONLY YEAR (2005) IT WILL EVER WORK.
ITALIAN PASTA DIET, IT REALLY WORKS !!

1) You walka pasta da bakery.

2) You walka pasta da candy store.

3) You walka pasta da ice cream shop.

4) You walka pasta da table and da fridge.

Also:
For those of you who watch what you eat, here's the final word on nutrition and health. It's a relief to hear the truth after all those conflicting medical studies.

1. The Japanese eat very little fat, lots of carbs, consume a lot of liquors, and suffer fewer heart attacks than Americans.

2. The Mexicans eat a lot of fat, eat a lot of carbs, drink lots of alcohol, and suffer fewer heart attacks than Americans.

3. The Chinese drink very little red wine, eat lots of protein & carbs, and suffer fewer heart attacks than Americans.

4. The Italians drink excessive amounts of red wine, tons of carbs, and suffer fewer heart attacks than Americans.

5. The Germans drink a lot of beer, eat lots of sausages and fats with carbs on every dish, and suffer fewer heart attacks than Americans.

CONCLUSION:

Eat and drink what you like.
Speaking English is apparently what kills you.
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If you are pretty good with numbers and puzzles you’ll find this web site entertaining and head scratching for quite a few hours. One thing for sure, you don’t get to terribly bored???? They have puzzles from easy to very hard and over 25000 of them. They also have little buttons to push to see how you are doing which I found kind of intriguing.
http://www.websudoku.com/?level=1

PLEASE REMEMBER THE CHRISTMAS PARTY SCHEDULED FOR 13 December 2005 @ 12:30PM – 3PM. It is to be in our meeting room at Warm Springs Resource Center. We need to have a RSVP by November 15th as to the number who plan to attend.
We realize it is a little early to start planning the party this far in advance to some but a lot of details have to be confirmed by the management of Warm Springs.
The Director of the Resource Center has already reserved the room for our usage for that day for those particular hours. The planning so far is to have a barbecue brisket, potato salad, & beans (with drinks provided by Warm Springs). It will be discussed at our meeting in September and October. The plan is to use some of the dues for the food and charge a fee of $2.00/plate to defray any other costs—like the paper plates, table clothes etc .

THE DAILY MOTIVATOR

Wednesday, September 7, 2005

Leave doubt behind

Doubt is nothing but a thought you choose to have. Just as easily as you choose to have doubt, you can choose to let it go.

Doubt has no power other than the power you give it. Yet the power you give it can be enormous.

When you focus on doubt, your problems and limitations become greatly multiplied. When you give yourself to doubt, your resources and abilities lose much of their value.

So why would you want to hold yourself back in this way? There's really not even a single good reason.

As soon as you sense that doubt is pulling you down, make the decision to leave it behind. Remember that each doubt is your own creation, and once you stop sustaining it, it will no longer be.

Choose to walk away from doubt. And you'll set yourself free to achieve great things.

Ralph Marston

Copyright ©2005 Ralph S. Marston, Jr. All rights reserved.
(From The Daily Motivator. http://greatday.com/v.html?1157h05BAxxq
This site has both the printed version and the slide show version with beautiful pictures. Mr. Marston lives in the Hill Country in the Travis Lake area just outside of Austin, Texas. This site is very interesting.

Happy Thanksgiving!

We should all count our many blessings

Read Comments »

ELDERCARE TEAM MAZE FOR 1 JULY 2005

Authored by BlueAngel on
Friday, July 01, 2005

This issue of Eldercare Team news for 1 July 2005 by Molly Shomer is full of very down home suggestions that will be easily followed and understood. Answers a lot of questions when thinking and talking about our elderly friends and relatives.

Elder CareTips:
Mastering The Eldercare Maze™

June 15, 2005

The newsletter for all elder caregivers. Sent twice a month, and only by request. You are welcome to pass on Elder CareTips™ to anyone you think might be interested. You'll find information about how to get your personal subscription below.

This Sounds Interesting

Athena Research Marketing has been hired to conduct a survey of caregivers or people with multiple sclerosis, traumatic brain injury, stroke, Alzheimer's disease or another form of dementia who find themselves uncontrollably crying or laughing, very easily or for no reason at all.

You will receive a $50 American Express gift certificate in exchange for qualifying and completing this survey.

If you feel that you are eligible to participate in this survey, call (800) 322.4499 anytime from 10:00 AM to 8:00 PM (EDT) Monday through Thursday, or 10:00 AM to 5:00 PM (EDT) Friday. Identify yourself as part of the "COVANCE SURVEY" and you will be connected directly to a study representative who will verify your eligibility for the survey.

At no time will your name be shared with any third party. All information provided will be maintained in the strictest confidence.

If you'd like to participate, call as soon as possible before July 20, as participation in this survey will be limited.

Please, Please, Take Me Home

A lot of older folks with confusion go through a stage of "wanting to go home." No matter how often they're told they are at home, they don't seem to recognize it as home. No matter how poor their memory, the desire to "go home" crops up over and over, and there's no diverting it.

No one can really get inside the thoughts and emotions of someone with medium to later stages of a dementing illness. The experts are probably getting fairly close to the truth when they say the present is becoming more and more strange, unfamiliar and frightening.

The desire to go home is probably the same desire you or I would have if we found ourselves in a strange and unreasonable place. We would want to go back to the home we remember as safe, secure, and predictable. For the dementia patient this home is most often the home of their childhood, where they were surrounded by their parents and other loved ones. These are the people they remember most clearly, as their more recent memories are slowly eaten away.

The "home" they are usually looking for isn't any particular house. Many would not recognize the house if you took them there. It's the lost feelings of warmth, security, strength and optimism of childhood and youth that they seem to yearn for.

So what do you do when the person you care for is obsessed with wanting to go home?

First, try not to argue about whether your loved one is "home." If he or she doesn't recognize it as "home" at that moment, then for that moment it isn't home.

Then, try diversion. Sometimes it actually works. Try going out for a short walk, or a drive. There's a real chance that, on coming back in the door, it may look like home again. For a while.

Other diversions might be the chores that have to be finished before doing anything else. Try to engage your loved one in drying dishes, folding towels, dusting, making a sandwich or tearing coupons from the paper. Often the engaged person will forget about going home for a time.

Keep a photograph album handy for a diverting conversation. Sometimes looking at pictures from their childhood and being given the chance to reminisce will ease a feeling of anxiety. Avoid asking questions about the picture or the past. Try to make comments: "That looks like Uncle Harold. Grandmother told me about the time he...."

A reassuring hug while you're doing these things can't hurt. A neck rub or a back massage can be relaxing, reassuring and diverting. We almost all like to be touched in these ways.

Put those things that are reminders about going home out of sight. Hats, coats and purses can trigger the idea of going home.

Sometimes the sight of the family car can trigger the need to leave. If this is the case, try parking it out of sight. If you must park on the street, ask the neighbor a few houses down if you can park there.

If your elder is constantly bound and determined to go home, one of the first things you must do is take precautions against him or her wandering outside alone when you aren't looking. Door alarms or deadbolts placed high on the frame can reduce the chance of wandering. Even if your elder has never wandered, and you don't think it's a danger, secure your doors if he or she is ambulatory. The first time could be the last deadly time.

Keep a log. You might find that certain times of the day are worse than others. What is the common denominator about these times? Is it near mealtimes (a snack might help). Is it during times when the environment is noisier than usual? Is it later in the day when shadows are creeping in? If you see a pattern, you can take steps to lessen or avoid some of the triggers.

Routine is your friend. As much as possible try to do the same thing at the same time of day, every day. The person with dementia doesn't manage "spontaneous" very well, as that usually demands a flexibility they no longer have. The need for the safety of routine is why you will see the same thing, at the same time, every single day on the activity chart in an Alzheimer's residence. Sameness and predictability are reassuring.

Wanting to go home is one of the most frustrating behaviors for caregivers. It will eventually pass. In the meantime, if all else fails, and as a last resort, ask the doctor about medications for reducing anxiety. They can help immensely.


Letters To God

Dear God,
I read the bible.
What does beget mean?

Nobody will tell me.

Love, Alison

Elder CareTip

Some pills can be really hard to swallow, so ask your doctor or pharmacist if it would be safe to grind it up and combine it with food. If they say this would *not* be a good idea, try using a fruit nectar instead of water. The thicker liquid is easier to swallow. Or put the pill in a spoonful of applesauce, pudding or honey.

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * *

If you've got a Reader Tip you'd like to share, please send it to molly@eldercareteam.com with the subject line "care tip."

Let me know if I can use your name. Or if you'd rather have me leave your name off, that's OK, too.

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Start living now. Stop saving the good china for that special occasion. Stop withholding your love until that special personmaterializes. Every day you are alive is a special occasion.

Mary Manin Morrissey

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The air conditioner went out on Saturday. Now, unless you live in Texas or another of the hotter 'n hot states this might not sound like anything to whine about. Let me tell you, I felt personally entitled to a whole lot of whining. Of course, the silly thing croaked it's last at 10:00 on a Saturday morning. You probably know exactly how much luck we had finding someone to come fix it over the weekend.

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Even the poor cat was comatose.

And why do I think my uncomfortable weekend is worthy of your attention? Because if I had been your elder my life might really have been threatened, instead of just miserable. Older folks' bodies don't regulate extreme temperatures well. Older folks don't always know when they should be drinking more water.

This is the time of year when we're going to start to see news stories about older people who died during a heat wave.

Please make sure that your elder has working fans in the house, as well as a recently-serviced air conditioner. Be sure that there is extra bottled water in the house, just in case. Check on your older neighbors, too, if you haven't seen them and the temperatures get excessive.

And if you can, please buy a fan on your next trip to the store. Donate it to one of the local organizations that distributes fans to the elderly. It will cost you very little, and you may literally save someone's life.

'Till next time,

Don't keep us a secret. If you know other people who should be reading this too, then do them and us a favor by telling them about Elder CareTips™. Just send them this link: http://eldercareteam.com/resources/newsletter.htm

© 2005 Molly Shomer, All rights reserved. You are free to use material from Elder CareTips: Mastering The Eldercare Maze™ as long as you include complete attribution, including live web site link and email link. I would appreciate it if you would let me know where the material will appear.

To subscribe, send a blank email to eldermatters@aweber.com

The Eldercare Team
SeniorLink, LLC
P.O. Box 700291
Dallas, Texas 75370
Phone (972) 395-7823 Fax (972) 395-7164
email: info@eldercareteam.com
©2005
Advanced Professional Member
National Association of Professional Geriatric Care Managers


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THE PHOENIX SAN ANTONIO POLIO SURVIVORS' ASSOCIATION NEWSLETTER MAY 2005-JUNE 2005

Authored by BlueAngel on
Wednesday, May 25, 2005

This is the current edition of the Phoenix with some useful information on communication skills, theft protection, the explanation of what a Physiatrist is and training necessary, there is a new report on the bane of our existence at times on Shingles from the NIH, as well as a resume of the recent speakers and the scheduled speakers through the summer months.
Ethel Taylor aka Blueangel

THE PHOENIX
SAN ANTONIO POLIO SURVIVORS ’ ASSOCIATION NEWSLETTER

Volume 5 Issue 1 “Education, Fellowship, Resources & Support” May 2005 – June 2005

Disclaimer

The San Antonio Polio Survivors’ Association Newsletter, THE PHOENIX, is intended to share, with our readers, information of interest to them, including medical opinion of others. It is not intended to offer specific advice or as a substitute for professional health care. Opinions, products, or services mentioned, herein, are not necessarily endorsed by the San Antonio Polio Survivors’ Association or the Warm Springs Resourcenter for People with Disabilities or Warm Springs Rehabilitation Foundation, Inc.; 5101 Medical Drive; San Antonio, Texas 78229-4801

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We start off this newsletter with an interesting article on communication skills from the Monthly Motivator which is a part of the Daily Motivator by Ralph S. Mars ton, Jr. via the email and the internet with his permission as stated by the following remarks: Copyright 2005 Ralph S. Marston, Jr. Used by permission. From "The Daily Motivator" at http://DailyMotivator.com .
The Daily Motivator is quite inspirational and gives you food for thought through the e-mail and through the picture clips of the countryside. He is from the Texas Hill Country and many of the country scenes are from around Kerrville, Texas.

THE MONTHLY MOTIVATOR - February 2005
COMMUNICATION SKILLSJ
anice Kn Pssst. Want to know a secret? Want to hear one word that can sum up a world of opportunity? In one word, it is -- communicate. The biggest opportunities of our day are available to those who can communicate most effectively.

We live in a world that rises and falls on the quality of communication. Do you want to earn more money? Then learn how to communicate better. Do you want to be more highly admired? Then improve your ability to communicate. Do you want to truly make a positive and meaningful difference in the world? Then work on better developing your communication skills.

Look at the world around you and you'll see a world that thrives on communication. The explosive growth of the Internet in the last few years is all about communication. Other communication technologies, including wireless telephone and data, satellite, audio, video, fiber optics and others, drive the world's largest, fastest growing and most successful industries. The opportunities for the average person to engage in meaningful, affordable communication grow on a daily basis. High technology devices and services are increasingly connecting us to each other, breaking down the material barriers of time and space. The ability to communicate is the most widespread and fastest growing wealth-producing resource of our time. Those who understand this, and who take advantage of the growing opportunities for communication, can significantly improve the quality of their own lives, as well as the lives of many others, through the use of effective communication.

Communication skills are much more than just an impressive-sounding phrase on a job application. Communication skills are essential to success in every area of life. Those who are most successful in the world today, those who make the biggest positive difference for the largest number of people, are those who have harnessed and effectively utilized the ability to communicate. In business, health, travel, sports, spirituality, relationships, parenting, leisure, education, and just about any other endeavor you can name, communication skills play a major role. Without question, the more effectively you can communicate, the more successful you will be.

So lets take a look at effective communication, and discuss ways in which you can take advantage of this powerful resource -- the ability to communicate -- which has recently become so abundant and widely available.

Communication begins with respect

Effective communication is based around mutual respect. By very definition, communication is an activity between two or more unique individuals. In order for that activity to be successful as possible, there must be respect on all sides.

Almost every technique and strategy for effective communication revolves around respect for others. So when attempting to communicate, it is a good idea to first put yourself in a respectful state of mind.

In your communication, don't talk down to others, and don't talk over their heads. By the same token, don't second-guess what is being communicated to you. Make a point to respect the unique perspectives of all parties involved.

Communication is nothing without respect. Maintain a genuine respect for those with whom you communicate, and you're well on your way to adding significant value to the information you communicate.

Communication is a two-sided process

Effective communication depends on being able to receive as well as send out information. Listening is just as important to spoken communication as is speaking. Reading is just as important to written communication as writing. Watching and experiencing is just as important as performing.

Communication is learning as well as teaching. Communication is a process in which useful information flows from one party to the other. It takes at least two to communicate effectively, a sender and receiver. Both sides of the equation are equally important.

Skilled communicators are just as skillful at listening as they are at speaking, just as skillful at reading as at writing. Communication depends on understanding, and on being understood. Both sides are necessary for effectiveness. Keep in mind that a primary goal of communication is understanding. That requires effort and skill at both ends.

Communication is a two-way process

Not only is communication two-sided; it also is most effective when it flows in both directions. The explosive growth of the Internet has been due largely to the fact that it is the first truly interactive mass medium. It facilitates communication just as easily from its users as to its users, and does so on a large scale. The most successful Internet websites are the ones that provide the highest degree of interactivity with their visitors.

To effectively communicate with others you must not only provide them with substantive, meaningful information. You also must solicit substantive, meaningful information back from them.

It is in this realm of true two-way communication that technology has so richly empowered us in recent years. The ability to produce and reliably distribute quality communications has literally exploded with the wide availability of innovations such as the Internet, lower and lower costs for long distance phone calls, powerful desktop computers and software, digital video and audio recording and playback devices, and other such marvels. The real breakthrough afforded by technology has not been the services and devices themselves, but their increasingly lower cost, improved quality and wider availability. Technology has opened up widespread two-way communications for a variety of powerful media. Those who take advantage of this newfound capability will be the most effective and successful people in the years ahead.

What do you want to express and why?

Just because communication has become logistically easy and accessible, does not mean that it is an effortless undertaking. The widespread availability of communication power has changed the nature of the effort. Rather than spending time, effort and resources on the "how" of communication, as was the case in the past, we are now free to focus more on the "what" and "why" of our communications.

Effective communication begins with an agenda. What do you wish to express? What specific information are you seeking to convey? And just as importantly, why? What is the purpose of your communication? What results are you seeking to obtain? Why do you desire these results in the first place? These are questions that can improve the quality of any communication, from a brief e-mail to a business proposal to a feature-length film.

Sure, you can communicate. Everybody can. But what is the point of your communication? What do you wish to accomplish? Now that you have your state-of-the-art multimedia computer and high-speed Internet connection, what do you plan to do with them? It's great to have powerful capabilities. Just make sure you put some effort into purposefully using them.

Consider the purpose of each communication. Determine what you wish to express and why. Infuse your communication with real, solid purpose. And it will likely accomplish precisely what you intended for it to accomplish.

Knowing and understanding the people you're addressing

The more you know about the people with whom you're communicating, the more effective your communication will be. Put yourself in the shoes of the people on the other end of your communication. What do they want to know? What are their concerns and motivations? What value can they receive from communication with you?

What method of communication would be most useful and appropriate to them? This is a key question. We tend to determine our method of communication based on what is most convenient for us. But to effectively communicate, you must also take into consideration what would be the most useful for those with whom you wish to communicate. For example, it might be easy and, on the surface at least, cost effective to run an advertisement in the newspaper. But your potential market (the people with whom you wish to communicate) might be better served by an informative website. So although the website initially requires more time and money to put together, it can make your overall communication much more effective.

Always keep in mind that someone other than yourself will be on the opposite end of your communication channel, whether you're speaking, sending a letter, writing a book or producing a video presentation.

Don't take communication for granted

We live in a world where communication is fast, easy and affordable. As such, we tend to take communication, and the ability to communicate, for granted. That is a mistake. When you fail to appreciate the power of communication, the quality and effectiveness of your communication suffers.

If you go ahead and send your communication with the assumption that "if I get it wrong, I can always fix it later" then you reduce the power of your communication. Just because communication is readily available is no reason to let yourself become sloppy at it. Though the ability to communicate is easily available to you, the opportunity to communicate with specific people may be limited. You've no doubt heard the aphorism "You never get a second chance to make a first impression." That's an important maxim to remember when communicating.

The fact is, yes, communication is readily available to everyone. So in order to use it effectively you must make your communication stand out. It used to be that just being able to communicate was enough. Now, with so much information coming at them, people are forced to discriminate in what they pay attention to. So the easy access to communication necessitates better quality in each attempt at communication. In order to make yours stand out and get noticed, you must craft them carefully, with substance, depth and respect.

Be accurate

Your level of accuracy affects not only the quality of the communication at hand, but also the effectiveness of future communications. If you make a sloppy error in your communication, then the next time you communicate, your credibility will be somewhat lowered. The effort you put into making sure you're accurate right now, can bring you benefits long into the future.

Because communication has become so highly and instantly interactive, the accuracy of the information you send out can significantly affect the quality of information you receive back. So avoid communicating any information of which you're not confident. A high speed Internet connection is of no positive value if you use it to download erroneous data. Being a dynamic public speaker won't get you very far if what you speak about is consistently wrong.

Make the effort to make your communications accurate. Only then will you reap the powerful benefits which quality communication can bring.

Be precise

All communication uses representations of reality. The more accurate your representations reflect reality in the mind of the person with whom you're communicating, the more effective the communication will be.

Avoid the use of ambiguous language or images. Be clear and precise in your communication. This is of course facilitated by knowing exactly what you intend to say, why you're saying it, and whom you will be addressing.

Not only must you be precise, you must be appropriately precise. A doctor counseling her patient must, for example, use terminology the patient understands. Highly technical medical terms won't communicate anything of value to the average person. Be precise, while also making sure the precision facilitates, rather than obscures, understanding.

Keep in mind that your communication is directed toward people who are not you. This may seem obvious, but far too many people communicate as if they are communicating with themselves. You cannot assume that the people with whom you're communicating already know what you're talking about.
Communicate with clarity, keeping in mind the perspective of those who will be on the other end of the line.

The same principle applies when receiving as well as sending information. When reading an e-mail sent to you by someone else, for example, keep in mind that he or she is writing from a different perspective than your own, and does not necessarily know the same things you know. If someone else communicates with you in ambiguous terms or in ways that you're unable to clearly understand, ask for clarification. Keep in mind that communication takes place with unique, individual people who are not the same as you. Craft your outgoing communications and interpret incoming communications accordingly.

Pay attention to protocol

Successful communication depends on adhering to agreed-upon protocols. In written communication, these protocols include grammar, vocabulary and spelling. In electronic communication, technical protocols are often critical. If you were to send a letter written in English to someone who understood only Arabic, your communication would have a serious protocol problem. Similarly, if you were to distribute a video presentation on DVD to people who were only equipped to view VHS tapes, the mismatch in protocol would entirely doom that effort at communication.

With the advent of the Internet, technical protocols have become vital to successful communication. When you're sending a communication over the Internet, think protocol. For example, if you're sending a file as an e-mail attachment, make sure the file is in a format that can be opened and read by the person on the receiving end. Sure, you may be able to open the file without any problem, but the person receiving it may not have the same software. So take that into consideration. Learn the most appropriate protocol and use it.

Learning protocols and adhering to them takes effort and discipline. Yet in a world where fortunes rise and fall on the quality and effectiveness of communication, it can be well worth the effort.

Whether you're communicating by telephone, e-mail, multimedia presentation, mail, public speaking, video, web page, or any other kind of medium, there are certain protocols to which you'll want to adhere. In any particular communication there are often many levels of protocol at work -- technical, social, linguistic, political, cultural, and more. Consider what the various protocols may be, and keep them in mind when crafting your presentation. Remember that protocols are not designed to limit the content of your communication. Rather, they are in place to make your communication more efficient, effective and widely understandable.

Be truthful

Deception has no place in effective communication. Though the truth sometimes hurts, it is far preferable than the alternative. Keep in mind that the most powerful communication is two-way, interactive communication. As such, any deceptions you send out will likely come back to you. Though deception may appear to give you a quick, easy advantage, adhering to the truth is a far better course. Lies must continually be maintained and expanded. The truth stands very well on its own. In a world that runs on communication, you'll soon find yourself at a serious disadvantage if you're not sincerely committed to being truthful. Simply put, truth is more powerful, more effective, and more efficient. Always use it when communicating.

Say enough but not too much

What you don't say can be as important as what you do say. Often when you tell too much, the essence of your message gets lost. Learn to state things as briefly as possible, while still supplying the important details.

Thoughtfully organize each communication, whether it is a web page, a voice mail message, a slide presentation, or anything else, so that the essential information is clearly evident and readily available. Avoid confusing the issue and wasting time with a lot of irrelevant data.

The quantity of your communication has little to do with its quality. Avoid adding "fluff" just to make it longer. Longer is not necessarily better. Give plenty of good, appropriate, accurate information but don't dump in a lot of junk.

To communicate effectively requires restraint. In our wired, digital world there is plenty of information available. We suffer from information overload. People must make choices about what to heed and what to ignore. The challenge of effective communication is to be concise without being shallow, to communicate in depth without overwhelming your audience. All the components of your communication -- whether they are words, pictures, sounds, graphs, charts, or colors -- should add substance and value to the message you're seeking to communicate.

Avert misunderstanding

Bolster the effectiveness of your communications by making an effort to correct misunderstandings before they happen. People who have names that are easily misspelled are already skilled at this. Someone named "Kathy" will often say, when giving her name, "Kathy with a K." That's because she knows that many people are likely to spell it with a "C." Instead of wasting the time to go back and correct it later, she makes sure the other person understands the correct spelling up front.

You have to assume that most people are not going to be very careful about getting information right, or about interpreting it in the way you intended. The extra effort you spend to make sure they do get it right the first time can save enormous amounts of time. Errors in communication are frequently compounded. One case of miscommunication, such as an incorrect phone number, a misquoted or misunderstood expression, or a name not spelled correctly, can be quickly repeated and amplified, sometimes to the point that it is impossible to fully correct. So be sure to get it right the first time. Do what is reasonably necessary to anticipate and avert possible misunderstandings.

Style is important but substance is essential

When we think of the various ways of communication, particularly methods that utilize more than one medium, we tend to consider that there must be a tradeoff between style and substance. That is outdated thinking. It used to be that it took a lot of time and effort to create crisp, stylish presentations, and that meant less time available for developing the substance of the content. But with today's computerized tools, that is no longer the case.

Audio, video, text, graphics and hyperlinks can be created, edited and adjusted at the click of a mouse button. Two very important rules apply in this new environment. Number one -- great, substantive content is no excuse for sloppy, aesthetically deficient packaging. Number two -- slick packaging is no substitute for shallow content.

Instead of having to choose style over substance or substance over style, today's effective communication demands both.

Communicate understanding

The ultimate goal of communication is to create, maintain and strengthen understanding. Understanding comes from respect and a commitment to integrity. Communication is a way to bring people closer together, not literally but in terms of understanding, awareness, spirit and wisdom. As such, there is no activity that offers more possibilities than effective communication. With communication, you can achieve great things for yourself and your world.

You live in a time in which communication is the defining resource. The ability to communicate in all sorts of different ways is available to you in abundance. Take hold of that enormous opportunity. Become an effective communicator and let your communication take you wherever you wish to go.

Ralph Marston Copyright 2005 Ralph S. Marston, Jr. All rights reserved.
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The following is an article concerning “Shingles” and how common it can really be among chronically ill and the elderly. I found it in the NIH web sites and thought it might be of interest to our group. I copied (& pasted) it so that you might have the opportunity of reading it.

NINDS Shingles Information Page

Synonym(s): Postherpetic Neuralgia, Herpes Zoster
Condensed from Shingles: Hope Through Research

Table of Contents (click to jump to sections)
What is Shingles?
Is there any treatment?
What is the prognosis?
What research is being done?

Organizations
Related NINDS Publications and Information
Additional resources from MEDLINEplus

What is Shingles?

Shingles (herpes zoster) are an outbreak of rash or blisters on the skin that is caused by the same virus that causes chicken pox - the varicella-zoster virus. The first sign of shingles is often burning or tingling pain, or sometimes numbness, in or under the skin. You may also feel ill with fever, chills, headache, or upset stomach. After several days, a rash of small fluid-filled blisters, reminiscent of chickenpox, appears on reddened skin. The pain associated with shingles can be intense and is often described as "unrelenting." Anyone who has had chickenpox is at risk for shingles. Scientists think that in the original battle with varicella-zoster, some of the virus particles leave the skin blisters and move into the nervous system. When the varicella-zoster virus reactivates, the virus moves back down the long nerve fibers that extend from the sensory cell bodies to the skin and cause the characteristic blisters of shingles .

Is there any treatment?

The severity and duration of an attack of shingles can be significantly reduced by immediate treatment with antiviral drugs, which include acyclovir, valcyclovir, or famcyclovir. Antiviral drugs may also help stave off the painful after-effects of shingles known as postherpetic neuralgia. Other treatments for postherpetic neuralgia include steroids, antidepressants, anticonvulsants, and topical agents.

What is the prognosis?

For most people, the lesions heal, the pain subsides within 3 to 5 weeks, and the blisters leave no scars. However, shingles is a serious threat in immunosuppressed individuals — for example, those with HIV infection or who are receiving cancer treatments that can weaken their immune systems. People who receive organ transplants are also vulnerable to shingles because they are given drugs that suppress the immune system.

What research is being done?

The National Institute of Neurological Disorders and Stroke (NINDS) and other institutes of the National Institutes of Health (NIH) conduct shingles research in laboratories at the NIH and also support additional research through grants to major medical institutions across the country. Current research is aimed at finding new methods for treating shingles and its complications. Recently, the federal Department of Veterans Affairs (VA) launched a nationwide trial — the Shingles Prevention Study — to study an experimental shingles vaccine. There is hope that scientists are close to creating a vaccine capable of preventing this painful condition.

Select this link to view a list of studies currently seeking patients.

Organizations

American Chronic Pain Association (ACPA)
P.O. Box 850
Rocklin, CA 95677-0850
ACPA@pacbell.net
http://www.theacpa.org
Tel: 916-632-0922 800-533-3231
Fax: 916-632-3208

National Chronic Pain Outreach Association (NCPOA)
P.O. Box 274
Millboro, VA 24460
http://www.chronicpain.org
Tel: 540-862-9437
Fax: 540-862-9485
VZV Research Foundation [For Research on Varicella Zoster]
40 East 72nd Street
New York, NY 10021

vzv@vzvfoundation.org
http://www.vzvfoundation.org
Tel: 212-472- 3181 800-472-VIRUS (8478)
Fax: 212-861-7033

National Foundation for the Treatment of Pain
P.O. Box 70045
Houston, TX 77270
markgordon@paincare.org
http://www.paincare.org
Tel: 713-862-9332
Fax: 713-862-9346

Related NINDS Publications and Information

Pain: Hope Through Research
Chronic pain information page compiled by the National Institute of Neurological Disorders and Stroke (NINDS).

Prepared by:
Office of Communications and Public Liaison
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892


NINDS health-related material is provided for information purposes only and does not necessarily represent endorsement by or an official position of the National Institute of Neurological Disorders and Stroke or any other Federal agency. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history.

All NINDS-prepared information is in the public domain and may be freely copied. Credit to the NINDS or the NIH is appreciated.

Last updated Feb 2005
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What Is a Physiatrist?

A physiatrist (fizz ee at' trist) is a physician specializing in physical medicine and rehabilitation. Physiatrists treat a wide range of problems from sore shoulders to spinal cord injuries. They see patients in all age groups and treat problems that touch upon all the major systems in the body. These specialists focus on restoring function to people.

To become a physiatrist, individuals must successfully complete four years of graduate medical education and four additional years of postdoctoral residency training. Residency training includes one year spent developing fundamental clinical skills and three additional years of training in the full scope of the specialty.

There are 80 accredited residency programs in physical medicine and rehabilitation in the United States. Many physiatrists choose to pursue additional advanced degrees (MS, PhD) or complete fellowship training in a specific area of the specialty. Fellowships are available for specialized study in such areas as musculoskeletal rehabilitation, pediatrics, traumatic brain injury, spinal cord injury, and sports medicine.

To become board-certified in physical medicine and rehabilitation, physiatrists are required to pass both a written and oral examination administered by the American Board of Physical Medicine and Rehabilitation (ABPM&R). The ABPM&R also has agreements with each of the boards of pediatrics, internal medicine, and neurology to allow special training programs leading to certification in both specialties.

Physiatrists treat acute and chronic pain and musculoskeletal disorders. They may see a person who lifts a heavy object at work and experiences back pain, a basketball player who sprains an ankle and needs rehabilitation to play again, or a knitter who has carpal tunnel syndrome. Physiatrists' patients include people with arthritis, tendonitis, any kind of back pain, and work- or sports-related injuries.

Physiatrists also treat serious disorders of the musculoskeletal system that result in severe functional limitations. They would treat a baby with a birth defect, someone in a bad car accident, or an elderly person with a broken hip. Physiatrists coordinate the long-term rehabilitation process for patients with spinal cord injuries, cancer, stroke or other neurological disorders, brain injuries, amputations, and multiple sclerosis.

Physiatrists practice in rehabilitation centers, hospitals, and in private offices. They often have broad practices, but some concentrate on one area such as pediatrics, sports medicine, geriatric medicine, brain injury, or many other special interests.

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Theft Protection
Please Read

A corporate attorney sent the following out to the employees in his company:

The next time you order checks, omit your first name and have only your initials and last name put on them. If someone takes your check book they will not know if you sign your checks with just your initials or your first name but your bank will know how you sign your checks.

When you are writing checks to pay on your credit card accounts, DO NOT put the complete account number on the "For" line. Instead, just put the last four numbers. The credit card company knows the rest of the number and anyone who might be handling your check as it passes through all the check processing channels won't have access to it.


Put your work phone # on your checks instead of your home phone. If you have a PO Box use that instead of your home address. Never have your SS# printed on your checks (DUH!) you can add it if it is necessary. But if you have it printed, anyone can get it.


Place the contents of your wallet on a photocopy machine, do both sides of each license, credit card, etc. You will know what you had in your wallet and all of the account numbers and phone numbers to call and cancel.

Keep the photocopy in a safe place. I also carry a photocopy of my passport when I travel either here or abroad.

We've all heard horror stories about fraud that's committed on us in stealing a name, address, Social Security number, credit cards, etc.

Unfortunately I, an attorney, have firsthand knowledge because my wallet was stolen last month. Within a week, the thieve(s) ordered an expensive monthly cell phone package, applied for a VISA credit card, had a credit line approved to buy a Gateway computer, received a PIN number from DMV to change my driving record information online, and more.

But here's some critical information to limit the damage in case this happens to you or someone you know:

We have been told we should cancel our credit cards immediately. But the key is having the toll free numbers and your card numbers handy so you know whom to call. Keep those where you can find them easily.

File a police report immediately in the jurisdiction where it was stolen, this proves to credit providers you were diligent, and is a first step toward an investigation (if there ever is one).

But here's what is perhaps most important: (I never even thought to do this).

Call the three national credit reporting organizations immediately to place a fraud alert on your name and Social Security number. I had never heard of doing that until advised by a bank that called to tell me an application for credit was made over the Internet in my name.

The alert means any company that checks your credit knows your information was stolen and they have to contact you by phone to authorize new credit.

By the time I was advised to do this, almost two weeks after the theft, all the damage had been done.

There are records of all the credit checks initiated by the thieves' purchases, none of which I knew about before placing the alert. Since then, no additional damage has been done, and the thieves threw my wallet away this weekend (someone turned it in). It seems to have stopped them in their tracks.

The numbers are:
Equifax:1-800-525-6285
Experian:(formerly TRW): 1-888-397-3742
Trans Union:1-800-680-72 89
Social Security Administration(fraud line):1-800-269-0271

We pass along jokes on the Internet; we pass along just about everything. Pass this information along. It could really help someone you care about .


SPEAKERS OF NOTE – PAST AND THE FUTURE!

In March, the new president of the Texas Polio Survivors Association of Houston, John Hartman was our speaker. He explained what their plans were for the coming year including the tentative plans for their associate support groups in the state. There are approximately ten. If you care to find out more about TPSA their e-mail is tpsa@flash.net or the web site www.texaspolio.org .

In April, we had no speaker, so we had a general discussion of how we wanted the organization to progress. As it happened, Tracie Harrison, RN, MSN, PhD from the University of Texas @ Austin School of Nursing, a former speaker, dropped by to see how our group was progressing and to find a group of polio survivors of Hispanic origin for a study they are doing. Tracie would appreciate talking with you about what the study is about and get your input. If you are interested, you could contact her at the e-mail address listed below:
Harrison, Tracie tharrison@mail.nur.utexas.edu

May 10th Sylvia Ojeda, Specialist for C.O.I.L.(Coalition for Independent Living )/Community Development Corporation spoke to the group about the increasing availability of affordable, accessible housing for the aging plus the disabled populations of San Antonio. For more information you may reach her @ sojeda@coilcdc.org ;210.599.0056; 210. 599. 3369 FAX; or at her office address: 6292 Queens Court #201, San Antonio, Texas 78218.

June 14, we will have Mr. Jess Hernandez of the Pulmonary Care and Pulmonary Rehabilitation Department of the Warm Springs Rehabilitation Hospital talking with us about the problems we have as we age with the Respiratory System like COPD, Bronchitis, Asthma, etc. and how we can prevent and maintain ourselves when these respiratory conditions occur in our every day lives.

July 12, we will have Cathey Horsak, Director of Field Services, Alpha-1 Association of the Alpha – 1 Organization to speak about Alpha – 1 Antitrypsin Protein Deficiency which affects
the Lungs and Liver and is another one of the inherited diseases that there is little known about.

August 9, we will have Tina Richards Smith to speak with us about the changes in AACOG and the changes in the Medicare Benefits that effects us all.

Hopefully we will be able to line up the speakers for September, October, November and December that will be of interest to the entire San Antonio Polio Survivors’ Association. If you know of someone, please don’t be hesitant to let us know soon, so we can call or you can call and schedule them for a specific time. IT could be a demonstration of new equipment, product or a get together somewhere ( like a brown bag type of thing—we are open to suggestions at the meeting and contacts with the leaders of our group anytime.)

CONGRATULATIONS

FOR THE BEGINNING OF ANOTHER YEAR OF

THE SAN ANTONIO POLIO SURVIVORS’ ASSOCIATION

“EDUCATION, FELLOWSHIP, RESOURCES AND SUPPORT”

THE PHOENIX
Editor
Ethel E. Killgore Taylor

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MISSION STATEMENT OF SAN ANTONIO POLIO SURVIVORS' ASSOCIATION

Authored by BlueAngel on
Monday, August 09, 2004

San Antonio Polio Survivors' Association has completed a statement of their mission and profile. We hope that it will explain our philosophy to you in a friendly and warm manner.

The following was suggested by one of our members due to the apparent lack of information being given as to time, place etc in this introduction to the Mission Statement and Profile of the San Antonio Polio Survivors' Association.....(This was given in the profile in bold letters toward the middle). Here goes:

Time: 2nd Tuesday each month except June - August (Subject to Change) 1PM

Place: Warm Springs Rehabilitation Foundation, Inc.
Resourcenter for People with Disabilities
5101 Medical Drive
SAT 78229 - 4601

Thank you for your patience and understanding.

San Antonio Polio Survivors Association
Associated with
Warm Springs Rehabilitation Foundation, Inc, Resourcenter for People with Disabilities
5101 Medical Drive
San Antonio, Texas 78229-4801

OUR MISSION: “Education, Fellowship, Resources & Support”

Education – To ensure that Polio survivors, family members, friends, healthcare providers, and the community are knowledgeable regarding Polio/Late Effects of Polio (aka Post-Polio Syndrome).

Fellowship - To ensure a social outlet for our members, et al to be able to have social activities, such as, dining out, and excursions out in the community.

Resources – To serve as a referral to useful local agency addresses/phone numbers, our own health care providers list, and to state/national organizations & agencies available when needed by the members.

Support – To provide an empathetic, ‘common ground’ community of survivors which the members & friends can share information and ideas on how to live a more comfortable, productive, and fulfilling life.

ASSOCIATION PROFILE

“Long forgotten by political and health care agendas, polio returns to haunt its former victims with new symptoms.

There has never been and never will be another disease quite like polio. An infectious disease caused by a virus, polio has been around for centuries. Some of the first references to polio are Biblical. There is an ancient Egyptian carving that appears to depict a man with classic polio findings who is leaning on his staff. Initially, polio was a rather unusual occurrence, which lulled the medical community and the public into a sense of complacency. And then during the first half of the 20th century, millions of people were devastated by polio as epidemics swept across the world. Polio's transformation from a sporadic disease to one of epidemic proportions in the early and mid-1900s was paradoxically due in large part to technological advances. Improvements in sanitation unpredictably allowed some diseases, including polio, to flourish because when water supplies consistently were contaminated with the polio virus (prior to improved sanitation), people would be exposed to polio in infancy during which time they had protection from the virus due to their mother's antibodies (from breast milk). With cleaner water, people were now exposed to polio at a later age when they were no longer protected by maternal antibodies. Thus, epidemics began and continued until the development of a vaccine in the mid-1950s. Blind to age, gender, and race, polio affects men, women, and children.”

(From “Polio Returns from the Dead” by Dr. Julie K. Silver, Director, Spaulding Rehabilitation Center for Polio, Framingham, MA in Rehab Management, The Interdisciplinary Journal of Rehabilitation, January 2002).

San Antonio Polio Survivors’ Association was formed as the result of an outreach by Warm Springs Rehabilitation Foundation, Inc. Resourcenter for People with Disabilities in May of 1999. or 1998 Cathryn Matson, who was Director of the Resourcenter at the time, obtained some of the members names from the Gazette International Networking Institute (GINI) now known as Post-Polio Health International. Cathryn called us and we had a tentative meeting to reorganize the support group and establish meeting place, times and a general format.

The first general meeting to organize the whole group was held in June of 1998 in the Resourcenter for People with Disabilities. The speaker at the time was Don De Vore who had been a patient at the Warm Springs Hospital near Gonzales, Texas in the 1940’s, spoke on his experiences and reviewed a book he had written as well.

We settled on a name and motto after several meetings. We decided on San Antonio Survivors Association since we did not want the perception of self-pity. We had the original Polio infection during the time when the culture did not accept the disabled into the general community. As a result, most of us became over achievers to maintain our dignity and self-esteem. The motto as defined above was how we wanted to focus the group as well as making the motto our primary goal.

We usually meet on the 2nd Tuesday of the month (except for the summer months June-August) at the Resourcenter. The meetings are held from 1:00PM – 3:00PM. Either e-mail or cards send notifications for the meetings. Occasionally, we will have a meeting on Saturday at a local restaurant so more members may attend.

The Association invites speakers to speak on subjects of general interest to the whole membership. Some of the speakers have spoken on the various agencies that are available to assist us or our families, different types of new equipment that is available to our community like the new Iglide wheelchair and the new cushion(to prevent pressure sores) available for wheelchair, scooters, power chairs, and occasional chairs found in homes.

We have a quarterly newsletter, The Phoenix, sent to our local members as well as to others in our area requesting information about Post-Polio Syndrome or to others who have granted us permission to reprint their articles or information. The newsletter tries to be educational, humorous and present everyday hints for easier living. The name of The Phoenix is meant to symbolize our ability to be reborn after every perceived set back.

A “blog” site was donated to our Association from an Australian “Blogger” Munuviana to keep a site for posting current information about Polio, Late Effects of Polio, Social Security Administration/ Medicare information as well as other types of information that could be of interest. The site address is: http://sapsa.mu.nu/ You can add your own comments& get a response directly on the article’s comment section you are reading.

The Association has a very limited library of videotapes of several meetings. You can contact Mike Beard for the use of the video tapes free of charge. The main thing we ask that you return them in good shape. We are novices at recording these, so they are by no means or stretch of the imagination a professional version. You can contact MIKE through the email or the phone as listed further on the mission statement.

SAPSA (San Antonio Polio Survivors’ Association) funds are donated by the members/friends for the various necessary items of stationary(computer paper and cards), printer ink, envelopes , etc. and the dedication of the friends/members to keep the Association functioning. We are entertaing the course of asking for a dollar donation per member per meeting to place in a "Piggy Bank" at the beggining of the meeting. The "Piggy Bank" has been purchased and will be arriving any day now. The piggy bank is clear blue plastic with several particians. Each as a designated purpose. IT was and is a toy for childeren to use to learn the value of handling money at a young age. I was hunting for something that we could use the was very functional and I happened across this object as a result of an interview that Dianne Sawyer did on Friday the 29th on Good Morning America. It will definitely do for our purposes. There, hopefully will be a print out by the bank that will be self-explanatory of the different sections functions. If you happen to want to donate more than the initial dollar you can put it in the donation section.
I'll do more of an explanation, hopefully, by our meeting the 9th of November.

ALL DONATIONS FINANCIAL OR IN KIND --I.E. SERVICE, INK, PAPER, ANY SUGGESTION FOR SPEAKERS OR DEMONSTRATIONS OF NEW EQUIPMENT WILL BE ACCEPTED.(as long they are legal {:>). )ANYTHING,YOU AS MEMBERS WANT TO SHARE, TO BE OF BENEFIT TO THE GROUP WHETHER YOU THINK IT WILL BE OR NOT!!!!!!!

San Antonio Polio Survivors’ Association is also associated with Texas Polio Survivors’ Association, Inc. of Houston, Texas (www.texaspolio.org E-mail tpsa@flash.net ) since 2001.

CONTACT INFORMATION

Warm Springs Resourcenter for People with Disabilities
5101 Medical Drive
San Antonio, Texas 78229-4801

Phone: 210.595.9200
Fax: 210. 614.0649

John Machen, Director Resourcenter
Jmachen@wssahosp.org

Donna Teall, Coordinator
Texas AgrAbility Project
Dteall@wssahosp.org


SAN ANTONIO POLIO SURVIVORS’ ASSOCIATION

Michael Beard
Phone: 210.490.3190
E-Mail: Michael78247@yahoo.com

Ruth & Tom Moon
Phone: 210.523.6216
E=Mail: Moonfamily3@sbbglobal.net

Ethel E. Killgore Taylor
Phone: 210.696.1710
E-Mail: blueangel7131@sbcglobal.net

The San Antonio Polio Survivors’ Association membership does want to offer their knowledge, support and fellowship to anyone interested in the Late Effects of Polio as it affects the survivors, their families, friends & healthcare providers.

Please feel free to attend our meetings and to offer suggestions for programs you are interested in.

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Vacation Time for SAPSA

Authored by BlueAngel on
Sunday, May 30, 2004

The San Antonio Polio Survivors Association will not be meeting from June through August 2004.

We will resume our meetings on September 14th at !:00 PM - 3:00 PM @ Warm Springs Resourcenter for People with Disabilities, 5101 Medical Drive.

We are attempting to obtain speakers from the Medical, Dental & other Healthcare providers to speak to us in their fields of expertise and as it applies to PPS & other problems we have as we age.

We are trying to obtain speakers from VIA to tell us about their different programs offered to the community; from various city, county, & state agencies that provide different services for the elderly and disabled citizens.

We will attempt to provide you speakers which you, as members, suggest.


Just contact us:
Ethel Taylor: blueangel7131@sbcglobal.net or 210.696.1710
Ruth Moon: Moonfamily3@sbcglobal.net or 210.523.6216
Michael Beard: Michael78247@yahoo.com OR 210.490.3190

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ANNOUNCEMENT: SAPSA Meeting Hours Change

Authored by BlueAngel on
Tuesday, May 04, 2004

An announcement and other information is being presented to this format in the expectation it will reach more members and other interested people or groups.

SAN ANTONIO POLIO SURVIVORS ASSOCIATION
%Warm Springs Rehabilitation Foundation Inc.
Warm Springs Resource Center for People with Disabilities
5101 Medical Drive
San Antonio, Texas 78229-4801

Date: 1 May 2004

Subject: Current Information

Our Meeting hours have been changed to 1:00 PM ---- 3:00 PM on the 2nd Tuesday of Each Month at the Resourcenter for People with Disabilities in Room 132.

The reason for the time change of the meeting is due to the transportation service request. They would appreciate our cooperation to have most of the vehicles be back no later than 4:30 PM. They have the services of Presa Community Center buses & drivers to supplement their own transportation vehicles and drivers. Warm Springs does provide transportation services to several of our members on a regular basis.

The fees are generally $5.00 each way. Talk to either Christiana Rodgers or Donna Teall for information on an application for transportation fees based on financial need. Call 210.595.9200 to talk with either of them about it.

The next meeting is scheduled for May 11, 2004 --- This will be the last meeting until September 8, 2004. Our speakers will be:

1. Luis Napoles of Johnson & Johnson. He will demonstrate the new Iglide wheelchair; show material on the Ibot chairs that can go up and down stairs & answer any questions you might have about this new type of wheel chair. He will speak at !:00 PM for about 20 minutes then will answer any questions you may have.

2. Oscar Garcia of the Social Security Administration Medicare Office here in San Antonio will be speaking to us at 2:00 PM about the new prescription medicine discount drug cards, etc. which are going into effect this year The Medicare beneficiaries receiving care will be most interested how this will be handled.

At our April meeting, we had a questionnaire to be filled in by the members. The subject was mainly what direction we want the Association to go. We will appreciate receiving those filled questionnaires at your convenience. For those that were not there we are sending the questionnaire for you to fill out and send back to us.

The Newsletter has not been written for a while. I finally brought one to Donna & Christiana for printing and mailing covering the months from November through March. Hopefully you will get a copy soon!

We have a “Blog” web site ( a type of interactive web site) which was donated to the San Antonio Polio Survivors Association from Munuviana of Australia. It was donated to us in December 2003. I am still learning how to navigate the site. It is still a work in progress.

The web site address is: http://sapsa.mu.nu/ . I hope that you find the site of interest.

If there are any articles or areas of interest which you would like to see posted, please get in contact with me.

We will soon have links with Warm Springs Resource Center and the Texas Polio Survivors Association.

Contacts you can reach for information about San Antonio Polio Survivors Association are:

Christiana Rodgers: 210.595.9200 or Crodgers@wssahosp.org

Ethel Taylor: 210.696.1710 or blueangel@sbcglobal.net (please note the change from Juno to sbcglobal)

Ruth Moon: 210.523.6216 or Moonfamily3@sbcglobsl.net

Michael Beard: 210490-3190 or Michael78247@yahoo.com

Hope to see you at our next meeting!!!

Ethel E. Killgore Taylor


Survey of Membership

Check whichever suggestion or question you might want to contribute your energies to make the Association more meaningful to you, please! Any not listed or any comments please write on back of this sheet.

Suggestions to make our Association to grow.

1. Contact different community groups

□ Seniors Groups & other community service groups (Lion’s Clubs, Rotary clubs, etc & tell them ,” We are trying to get information out about Post Polio Syndrome--can you help us?”)
□ Tell our personal health care providers and ask for their help in getting the information out . You might want to hand them, a copy of “What internist should knowabout Post-Polio Syndrome” by Dr. Julie K. Silver
□ Neighborhood Papers
□ Directors of Nursing Education at the various schools of nursing, hospitals, clinics by phone, fax, e-mails , snail’s mail.
□ Radio & TV outlets about getting our information out via Public Service Announcements
□ Any suggestions you might want to make

2. Creating more interest in our meetings and Association do you want to

□ share experiences
□ discuss problems
□ ask questions
□ continue meetings on the 2nd Tuesday of each month
□ once a quarter have a “social” on a Saturday like brown bagging the meeting at the Resourcenter or going out some place mutually decided by the group
□ Meeting times would be better from 1:00 PM – 3:00 PM

3. What do you as our members want & how could you be better supported by the other members, the leadership or the Resourcenter ?

□ Social activities
□ Financial affairs
□ Family affairs
□ Emotional needs
□ Would you like a member to contact you periodically by phone just to talk?
□ If the answer to the above is yes how often?
□ Transportation Services information
□ Travel -- day trips? Possibly an overnighter?

Since we do not have or collect dues, two of us have defrayed the cost of the meeting notification cards and the newsletters. We have appreciated the contributions made at some of the meetings to help defray some of that cost as well as the refreshments the first year or so we were meeting. The cost of paper, cards, ink, & printing are becoming more expensive & we are both on fixed incomes. We would like to suggest a donation to the association of $10.00/year on a voluntary basis if you want to continue receiving the Newsletters and the Notification Cards. Naturally if no one could afford that amount yearly, possibly you could donate $5.00 every 6 months.

We would also like to have your current addresses, phone numbers, e-mail addresses to update the membership rolls which we are trying to do at the present time.

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